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CRMR Spin@
What is a Reference Centre on Rare Diseases (CRMR)?
Who are we? The mission of the CRMR Spin@
The components of the Spin@ CRMR
Diseases covered
Spin@ centres
Coordinating centre
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Competence Centres (CCMR)
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Children
Care pathways
Therapeutic Patient Education (TPE)
Transition
Adults
Care pathways
Therapeutic Patient Education (TPE)
PNDS
RCP
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multidisciplinary team (MDT)
