The 17th International Rare Disease Day took place on Thursday 29 February 2024. This annual event is coordinated by EURORDIS and, in France, by the Rare Diseases Alliance, supported by the members of the Rare Diseases Platform ( Rare Diseases Info Services, the Rare Diseases Foundation, Orphanet, and the AFM-Telethon), the Rare Diseases Health Networks (\u2018Fili\u00e8res de Sant\u00e9 Maladies Rares\u2019 or \u2018FSMR\u2019), patient associations, volunteers and the Rare Diseases Expertise Platforms (\u2018Plateformes d’Expertise Maladies Rares\u2019 or \u2018PEMR\u2019).<\/p>\n\n
This is a public event designed to raise awareness among the general public and decision-makers about rare diseases and their impact on the daily lives of those affected and their families.<\/p>\n","protected":false},"excerpt":{"rendered":"
The 17th International Rare Disease Day took place on Thursday 29 February 2024. This annual event is coordinated by EURORDIS and, in France, by the Rare Diseases Alliance, supported by the members of the Rare Diseases Platform ( Rare Diseases Info Services, the Rare Diseases Foundation, Orphanet, and the AFM-Telethon), the Rare Diseases Health Networks […]<\/p>\n","protected":false},"author":1,"featured_media":807,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1121","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-classifiee"],"yoast_head":"\n