{"id":1049,"date":"2024-01-17T17:32:57","date_gmt":"2024-01-17T16:32:57","guid":{"rendered":"https:\/\/crmr-spina.fr\/care\/pnds\/"},"modified":"2024-04-17T18:19:28","modified_gmt":"2024-04-17T16:19:28","slug":"pnds","status":"publish","type":"page","link":"https:\/\/crmr-spina.fr\/en\/care\/pnds\/","title":{"rendered":"PNDS"},"content":{"rendered":"\n<p>The National Protocols for Diagnosis and Care (PNDS) are best practice guidelines for rare diseases. The aim of a PNDS is to explain to the professionals concerned the optimal diagnostic and therapeutic management and care pathway for a patient suffering from a rare disease.<\/p>\n\n<p>The French National Authority for Health (HAS) is not involved in the preparation and design of each PNDS. However, the HAS has a right to audit the methodological quality of certain PNDS.<\/p>\n\n<p>The HAS publishes the PNDS on its website, accessible via <a href=\"https:\/\/www.has-sante.fr\/jcms\/c_1340879\/fr\/protocoles-nationaux-de-diagnostic-et-de-soins-pnds\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/www.has-sante.fr\/jcms\/c_1340879\/fr\/protocoles-nationaux-de-diagnostic-et-de-soins-pnds<\/a><\/p>\n\n<p>The PNDS include a &#8220;summary for the GP&#8221; section.<\/p>\n\n<h2 class=\"wp-block-heading\">List of the latest PNDS published by the HAS<\/h2>\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary>Management of dysraphism in the perinatal period<\/summary>\n<ul class=\"wp-block-list\">\n<li>The author of this PNDS is <strong>Pr Jean-Marie JOUANNIC<\/strong><\/li>\n\n\n\n<li>Published on the French National Authority for Health (HAS) website in December 2021<\/li>\n\n\n\n<li>Download the documents in PDF format :&#13;\n<a href=\"https:\/\/www.has-sante.fr\/upload\/docs\/application\/pdf\/2021-10\/pnds_texte_prise_en_charge_des_dysraphismes_en_periode_perinatale.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">PNDS &#8211; Prise en charge des dysraphismes en p\u00e9riode p\u00e9rinatale<\/a>&#13;\n<a href=\"https:\/\/www.has-sante.fr\/upload\/docs\/application\/pdf\/2021-10\/synthese_mg_prise_en_charge_des_dysraphismes_en_periode_perinatale.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Synth\u00e8se du PNDS \u00e0 destination du m\u00e9decin traitant<\/a><\/li>\n<\/ul>\n<\/details>\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary>Early rachis deformations<\/summary>\n<ul class=\"wp-block-list\">\n<li>The author of this PNDS is <strong>Pr Raphael VIALLE<\/strong><\/li>\n\n\n\n<li>Published on the French National Authority for Health (HAS) website in October 2022<\/li>\n\n\n\n<li>Download the documents in PDF format :&#13;\n<a href=\"https:\/\/www.has-sante.fr\/upload\/docs\/application\/pdf\/2022-10\/pnds.rachis.raphael_vialle_vf_21.09.2022.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">PNDS &#8211; D\u00e9formations pr\u00e9coces du rachis<\/a>&#13;\n<a href=\"https:\/\/www.has-sante.fr\/upload\/docs\/application\/pdf\/2022-10\/synthese_mg_deformations_precoces_du_rachis.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Synth\u00e8se du PNDS \u00e0 destination du m\u00e9decin traitant<\/a><\/li>\n<\/ul>\n<\/details>\n\n<h2 class=\"wp-block-heading\">PNDS soon to be published by the HAS<\/h2>\n\n<details class=\"wp-block-details is-layout-flow wp-block-details-is-layout-flow\"><summary>Post-natal care for closed dysraphism<\/summary>\n<ul class=\"wp-block-list\">\n<li>The person responsible for this PNDS is <strong>Dr Timoth\u00e9e de Saint-Denis<\/strong>.<\/li>\n<\/ul>\n<\/details>\n","protected":false},"excerpt":{"rendered":"<p>The National Protocols for Diagnosis and Care (PNDS) are best practice guidelines for rare diseases. The aim of a PNDS is to explain to the professionals concerned the optimal diagnostic and therapeutic management and care pathway for a patient suffering from a rare disease. The French National Authority for Health (HAS) is not involved in [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":1042,"menu_order":40,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1049","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PNDS - SPIN@<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/crmr-spina.fr\/en\/care\/pnds\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PNDS - SPIN@\" \/>\n<meta property=\"og:description\" content=\"The National Protocols for Diagnosis and Care (PNDS) are best practice guidelines for rare diseases. 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